The Gluten Free Diet Vs Gastroparesis

Hey,

 

Long time no speak.

So last time we spoke, I mentioned that I had been told to try a gluten free diet. I'm around a month into it now and can see a remarkable difference.

Although I am still getting pain (some days worse than others) and can definately still feel a build up of food (Gastroparesis doesn't like to be forgotten), the bloating is basically gone for the most part aside from the really bad days. On those days, I have no choice but to just embrace the pregnancy look. HAHA!

 

It does seem to look like I have some sort of gluten intolerance so I guess the next step is to have the tests done for it.

I'm very mixed feelings about it all. It would be great if this was the thing we were waiting for and together with pain killers will help me get back to some sort of ''normal'' like without too much pain. BUT.... at the same time, a gluten free diet is so blooming hard. Gluten is literally in almost EVERYTHING. Between that and a Gastroparesis friendly diet, I feel like living off air would be far easier. I know it probably sounds diva-like and you are probably thinking, 'why on earth is she complaining if it has lowered her pain and bloating a lot', and don't get me wrong, I'm totally estatic that it seems to have reduced the pain and bloating for now, but I've got to the point of, I literally don't know what I can eat and how long this lessened pain will last. Between two very limiting diets, it's just making it so difficult to find things to try and eat. Even once I have then found something that should be ok, it is still unstable when it comes to pain levels. It's like I go through all this research to find half a douzen suitable things to still end up in pain of some sorts.

Another thing I have noticed since managing to eat a little more that you would probably tell me to shut up and stop being silly is, I haven't eaten much or anything for the past 3-4 years now and so, everytime I eat and think about what I have eaten during the day to try ensure I don't over eat as the Gastroparesis is still obviously there, I am constantly thinking, 'omg I have eaten so much today' or 'is this enough to be eating?' or 'omg I am overeating this can't be healthy' etc....It sounds so ridiculous and silly but it is like I have lost all knowledge of how much and what I should eat each day. All I want to do is eat normally like everyone else but it has so totally messed with my brain because I have gone form nothing to something which then suddenly seems like loads. Do I sound ridiculous? I do, don't I?

 

My mood as per usual has been all over the shop and I am feeling totally hopeless with my life. I feel like my life is a mess in every aspect and just needs sorting out. What do I even want to do with my life? I feel so deflated... does that even make sense? Was that the right word or am I just talking absolute sh!t? I feel like this post has totally turned into me just rambling on about everything that's swirling round my head but then makes no sense on paper.. or atleast when it is not structured in anyway. But, that just kinda explains and shows how my head is right now I guess. Real life people, real life!

AND BREATHE SOPHIE............. haha

I'll leave it there for now, let you recover from the gobble language that just occured. I'll be back before you know it... I promise... no long break this time :)

Thanks for reading and

Stay Strong
<3

Supermarket Allergy Outrage

Hey to you all,

If you are disabled, do you get charged more for parking in a disabled bay? NO

If you need extra help in an airport, do you get charged more for it? NO

So why do you get charged a ridiculous amount more for having an allergy and needing slightly moderated foods? It is absolutely outragous and I have no idea how supermarkets and other food places get away with it.

I've been unable to tolerate regular milk for a while now and have always thought it was disgusting the amount you get charged for soya milk. But, after having been to both Tesco and Asda in the past week to try get some Gluten Free products, I was absolutely gobsmacked. Just because someone has a Gluten/Wheat Allergy, how on earth do these people think it is okay to charge three times the price for half as much. It is basically punishing someone for having an allergy. I'm not being funny, I know things are expensive in general at the moment with times being tough and all that malarky, but us as customers are also not made of money. To charge these extautionate prices will end up causing more and more people with allergies to be unable to afford to eat a healthy diet. I've only been on it for a little under a week and already I feel for my parents pocket! They're going to have to take on an extra job or two each to be able to feed me at this rate... and I don't even eat all that much HAHA!

Not only are the prices ridiculous, but the quanitity and variety of products they do for Gluten and Wheat free is minimal. I know I am working off two different types of diets at the moment and both are very restrictive, but I mean seriously.... a couple of shelves in a huge supermarket is crazy. Not only is there not a lot of choice but that choice is lessened due to the fact the shelves just never seem to be stocked up much.
 I'm not one to complain about everything and anything but when it comes to health, it is one of the most important thing in life. Literally none of this makes sense to me.

Take this for example....

A Fraction of The Product.... OVER double the price!
£1.35 vs £3.00

In what way do they see this as acceptable? Because you have an allergy, you should either spend every penny (assuming you can afford it to begin with) you have on a tiny loaf of bread OR give yourself an allergic reaction but be able to afford more than a loaf of bread and go for the normal option?

I have nothing against either of these (or any other) supermarket but it really angers me. For that matter all food places be it where you buy food to make or a restaurant. I work in a hotel, within that hotel, there are 3 different food outlets. So in theory, one should be able to have a fair few options they can choose from should they have a gluten/wheat allergy. Is that the case? NO. Starbucks literally have one sandwich/wrap and one brownie. The pub and restaurant don't have many more options either. I'm not slamming them or anything,  unfortunately this is something I'm noticing across the board in restaurants and fast food type places. Dominos and Pizza Hut are one of the few pizza place that do a gluten free pizza base as far as I am aware. If you want Gluten Free pasta in an Italian restaurant though, you're out of luck. Or perhaps you're hungry and stop off at a petrol station or convenience store.... sorry, but you're out of luck because you will probably find nothing.
There is such a large market and need for 'free from' items throughout all these various food outlets but why is it not being done? Or if it is, why are you paying such a ridiculous amount for what options they do actually provide.

I know I am new to this whole gluten free thing, well very new.... like a little under a week new, but, a year or a week into this, it wouldn't make it any more acceptable, reasonable or fair.

I'll stop moaning now. I just truly think it is disgusting that because you have an allergy where you need 'free from' products, you get limited choice and huge bills.

What are your thoughts on this matter?


Stay Strong
<3



The Pacemaker Returns | Happy New Year

Hey Hey Hey,

HAPPY NEW YEAR!! - I hope you had a good one.

I'll start with my normal sentence..... Sorry I haven't posted in a while. :)
I feel like I never have time to stop and breathe HAHA.

Christmas was a relitively good one for me this year for the first time in about 4 years. Don't get me wrong, I was pretty anxious leading up to it and on the day but I was with my family and people I love rather than home alone. There were certainly points of the day that were really hard such as when I could smell of see Christmas lunch or when it came to nibbles at dinner and I was in pain. Put that aside and I had a nice day. I got to know people a little more that I didn't know, spent the day with my boyfriend and even had a sing song on SingStar with the family. At one point we were all dancing to the YMCA. It was nice to have some normality and be able to join in and have fun.

New Years Eve I was working 'til 10:30pm which meant I couldn't do a whole lot. So my colleague who I was working with that night is also my friend, so we just went over to the Pub in the same hotel and hung out with a few others to bring in the New Year so it wasn't so bad. What did you do to bring in the New Year?

In the last week or so, my tummy has been behaving a little better and I have been feeling the pacemaker A LOT. It feels like it is sucking in my stomach and then realeasing it. Sometimes it just feels strange but others it is actually a little uncomfortable. I have managed to have a few meals for dinner and then still walk a little. Although, as I walk, it does aggrovate the pain and gets more painful. I can't walk all that far but atleast I can move to the comfy sofa rather than a kitchen chair. Can't complain there I suppose. I have been pretty bloated though which makes the pain worse which SUCKS!
We mentioned this to my pain specialist when we went this week
and he asked which foods tend to bloat me the most. I'd never thought of this but it is always foods such as pasta and pizza etc.. He's told me to try a gluten free diet for two weeks as it is possible I could have a gluten allergy which could explain some of the pain and weird temperatures. Some nights whilst I'm asleep (or trying to as the case is most the time), I will suddenly get super hot and feel like I'm sweating, but then normal or cold the next. If I have an allergy to something, no matter what painkiller I try, my body is still going to suffer and feel bad but it is having an allergic reaction. I've never really looked up what gluten is in until now. And guess what? It's in pretty much everything. My mum is getting me some gluten free foods so we shall see how it goes and if it helps reduce the pain, swelling and other symptoms I get. If it does help, my pain specialist said he will do the proper test to check for allergies.

We also discussed EDS with him. Now, I didn't know huge amounts about this condition but have heard it mentioned a number of times. The more we seem to talk, hear and read about it, the more the possibility is that I may have that too. I know I know... I'm medical condition greedy... haha!
Many symptoms seem to fit things I've had through out my life and EDS can cause Gastroparesis. Between that and the gluten, it could explain a lot. BUT... before you get all excited, neither of those conditions are curable either. Yes, gluten allergy you just cut out gluten (easier said than done as I am finding out) but that is a big life style change and the same applies for EDS. There are ways you can try manage it but nothing to cute it. Why does my body go for all the ones you can't put a plaster on or take some Calpol and it goes away? Those were the days!

Well, I think I'm going to leave it there for this post...

Have a good day

Stay Strong
<3

Vagus Nerve Stimulator Trial (& Review)

Hey All,

Hope you are well.

Recently, I got to try a new type of nerve stimulation called the 'Vagus Nerve Stimulator', by a company called GammaCore which is actually from New Jersey, America (where else would it be eh?). If you have been reading my blogs for a while or seen my videos, you'll know I have a Gastric Pacemaker already. It helps with nausea to a degree but not for pain at all which we understood would be the case. From having it off, we know I most certainly benefit from having it on. My specialist decided I should try a new type of non invasive treatment. It has no side affects, is painless and doesn't involve popping more pills.

Vagus nerve stimulation sends electrical signals along a nerve, called the vagus nerve, parts of which run through the neck to the brain. For many years, vagus nerve stimulation has been used to treat various disorders, such as epilepsy and depression, in thousands of patients and is now branching out and being used for other conditions.

It is a relitively small device that you place on your neck over a conductive gel. You position so that it is on your Vagus nerve, which I got shown how to find by a very nice gentleman from the company over a Skype session along with how to use the

device itself. Did you know that the Vagus Nerve is only 3mm wide? It can be a little tricky finding the exact positioning which I think may hinder the way it works a little as you don't end up getting the full dosage. You know when you have hit the right spot as your lip drops to the side a little and looks a bit like if you have a stroke but doesn't hurt. It just feels like a tingle. The device itself has a self timer and each 'dosage' is 90 seconds, which you have to do on each side of your neck. You are also able to control the stimulation level with the two blue buttons on the device. I would usually get to about level 30 and that would be strong enough for me. So, the maximum I got to was 6 minutes on each side at around level 30 or so.

This is the device and
conductive gel you are provided

You pop a little of the gel on each of the sides before placing
it on your neck

The advantages to this treatment are:

• Non-Invasive Neurostimulation Technology
• Non-Pharmaceutical
• Minimal Side Effects
• Control over your treatment

• Direct to the nerve itself

The disadvantages to this treatment are:

• Hard to find the nerve in the 90 seconds as well as receiving the treatment
• Needs to be repeated throughout the day

• Expensive as the device only lasts a month at a time

I was fortunate enough that my specialist managed to get me a free months trial of this device. The company are trying to branch out in what the device can help with, so it meant that it was a win win for both of us.

During the first 4/5 days it seemed to show some positive results and looked to be hopeful. The pain wasn't as bad or didn't start straight away so I had time to move somewhere more comfortable than the kitchen chair. I have spent hours sitting on the same kitchen chair after eating because the pain is that bad. It give you a very numb bum that's for sure.

The lip drops when you hit the spot...SEXY!

Unfortunately, I found that even when we were increasing the amount of times I was repeating it during the day, the symptoms just seemed to come backwards to where they were. I was struggling to eat because of pain and even fluids were becoming an issue. See, in theory, the idea of stimulating the nerve directly is a fantastic idea that should have great outcomes. I do think the fact that you don't know if you hit the right spot before starting the timed treatment hinders it. Particularly at the start of it all. If you turn it on and then have to move it around slightly or at a slightly different angle until you are in the exact spot, you don't receive the full treatment and therefore how are you able to get the full benefit?

Also, another thing I don't understand with using the device for Gastroparesis, is that you're only getting the treatment 2-3 times a day (give or take), What about the rest of the day when there is no stimulation happening? How is the stomach going to digest the food without any aid? It isn't like the pacemaker device that is working 24 hours a day.Don't get me wrong, I was more than happy and hopeful in trying it, but I also had my doubts. It was like I had woken up in heaven the first few days when my symptoms were less and more under control. I just don't understand what is there to help in between each time of doing it.

Overall, I really do think this treatment has the potential as it is direct to the source of the problem. However, unfortunately, for me, it didn't work aside from the initial 'hit' from the direct stimulation. I think there are things and way they need and could improve how it works so that you can get the full benefit and throughout the day. It has only been trialed in a handful of Gastroparesis patients and from what I understand, they've all had various responses to it. I do know that my body has a tendancy to react well to things initally and then stop working after a week or two. That could be the reasoning behind the device not working well enough for me, who knows!

I really hope that they make some adjustments and I can try it again in the future. Maybe with better results.

I am very grateful I got to try the device and a huge thank you to GammaCare (not that they are reading this) for letting me trial it. A big thank you to my specialist Professor Epstein (again not that he is reading this) for setting it all up for me.

Well, that is all for this post today.

Question:

Have you tried this device if you are a fellow Gastroparesis sufferer? Or what do you think about the device if you are a non-sufferer.

Any more questions that I didn't cover within this post? Let me know in the comments!!

Stay Strong

<3

Reality Hits Home

Hey Hey Hey

How you doin'?

As per usual, I haven't posted in a while. I'm sorry I suck at this. I feel like the last few weeks have been such a blur full of crazy things. 
I debated posting this for quite a while as I wrote this when my emotions were exceedingly high and the writing got very real and I wasn't sure if it was too much.

I had two weeks off of work and it was nice to have a break from somewhere that you are 24/7. Sometimes it's just a must. I have however got a Kidney Infection (waiting for bloods to confirm it but have every single symptom of it and am being treated for one. JOYS. Loving life :/

My trial of the thingumabob finished a couple of weeks ago now and am working on writing a full post about it. But, cut a long story short, the pacemaker has been turned back on!! I've got a couple of week trial period with it on full blast and if no better.... going back to an NJ Tube temporarily may be the answer until a plan is put in place. Unfortunately, there doesn't seem to be much of a plan unless I am willing to keep trailing drug after drug. I keep getting told that 'it only takes one to work'' but how many am I supposed to try and suffer from in the mean time. I know people around me are only trying to help and that the medics have got to the point where they can only give me different types of medicine. I just don't have it in me to continually have bad reactions to medications one after the other and end up worse. With all the things they can do in medicine these days, they have no idea how or what to do now so I can do a simple task that millions of people do every single day. EAT.
I take a cocktail of medications every morning and evening just to try and live a some what 'normal' day. Do I? HA HA HA ... far from it.

I feel like I am going to just explode at every moment. The smallest things just make me go crazy. The last two pain specialist appointments have not gone well. One ended with a full on panic attack that they were almost going to have to give medicine to calm me down and the last ended with me locking myself in the toilet. Although I have known what my health condition involves and have hit many lows realising what life is going to be like, the reality of it has really hit me recently with all the failures of medicines and treatments not working. The fact that other than drug after drug, my doctors don't seem to have any clue to what to do. Don't get me wrong, I absolutely love my pain specialist (although he probably hates me after my last appointment) and I know he is trying his absolute best and trying his best to support me, I have just got to the point where I am so ridiculously fed up. I am literally ruining everyones life and making everything hard for everyone around me.

All I want to do is hide away, curl up and cry. Not loving life right now to be honest. Not at all!




Of course, there is a bow on there.
Wouldn't be Sophie's otherwise :)

With Christmas around the corner, my feelings are just all over the place. It's another day that is about spending time with your family and... having a big Christmas dinner. Yet another day that food is majorly involved, meaning even more of the TV adverts are food related. It is crazy that with everything that could be advertised in the world, food adverts are 99% of the ones shown over and over and over! It's doing my flipping head in. I don't watch much TV as it is because of that, but it is even worse at the moment. I'm stressed about Christmas Day because I don't want to be at my family's house with everyone watching them eat, but I also don't want to be left on my own knowing everyone is together and I am once again alone and missing out on being with all the family. It's the same catch 22 as every single occasion that happens through the year. On the flip side, I have decorated my room which now looks like santa's grotto. I originally wanted to put some fairy lights around my window because every time I see them, the seem to relax me a bit. It somehow then turned into wanting a little Christmas tree for my room that I can put more lights and glittery things on and presents once I start wrapping them up, which then also included getting even more lights for across my bed. I love it though, so I don't care! :)

I don't think I have much else to say to be honest. My mind feels like a mushy mess right now.
I also don't want to bore you any further.

So until the next time,

Stay Strong
<3

Self Esteem - Only So Many Times

Hey Hey Hey

How ya doing?

So, my previous post took me a while to write. It was done over a few week as my head was all over the shop. This post is a little more structured I guess you could say? Or then again, this is me writing it, so it probably isn't.

The real world is a scary scary thing. There are some good times but also some very bad times. The things we go through in life, makes us who we are. The struggles we go through strengthen us, and the good times we have put a smile on our face. Everyone has self doubt at some time in their life but sometimes, it can really affect you quite badly at times. The things that knock us down are supposed to make us stronger but sometimes you can only take the knock backs so many times.

Self-esteem is a term that is used to reflect someone's overall emotional evaluation of their own worth. It is a judgment of theirself as well as their attitude towards theirself.

Low self asteem, self blame and anxiety go hand in hand but unfortunately manifester until you end up in a complete state of not believing in yourself and thinking you're not good enough at anything.
There are a number of things that knock your confidence and make you doubt yourself. However, when things are constantly happening, it can give really knock you, causing yourself to have no faith in yourself and your abilities. It could be anything from constantly getting told you're not getting good enough grades at school, to bullying, told you're too fat or too skinny. or being over looked at work for higher positions or jobs in general.
Health issues are also a huge contriubtion to low self belief. There are only so many times you can keep brushing something off your shoulder before you begin to believe that it might actually be yourself and your abilities that are the problem.

I know myself that my health knocks my confidence big time and anytime something goes wrong or against me, I put it down to the fact that I am not good enough or my health stopped it from happening. Work is a big one for me. I have always done my best to keep working through my health because it keeps me and my mind busy. There have been many times though that promotions come around, or an opportunity of some sorts that I don't get or even sometimes don't get given the chance to get. Everyone will have some sort of experience of being over looked at work or school or in life in general.... but how many times will you keep yourself in a position or place where you are knowinly
putting yourself in a position that it can and most likely will keep happening (no matter what you are promised). Or even something simple like trying to complete a shift but not necessarily being support by your whole team or even just struggling to complete it. There have been many of days where my health hasn't been great and I struggle to complete my regular shift. Sometimes I'll take a seat for a while and sometimes I will try push on. Either way, it knocks my confidence in my ability to still be able to work normal hours or even work at all.


Unfortunately, low self esteem happens within us all. We all deal with it differently and some of us will show it as being more vulnerable and others will act over confident to cover up being extremely unconfident in themselves. As with anything, we all have our own methods of dealing with things. Having that lack of confidence can have a huge impact on everything in life whether we realise it or not. It will determine how we see ourselves and our capabilities in different situations. All those times we should 'Just Say Yes' become no's and all those no's lead to further knocks in confidence and isolation. Although, sometimes, these situations that happen can lead to better things that you may not have gotten without. For example, you could stay in a place that really doesn't make you happy and keeps knocking your self belief and hope, but, it ends up giving you contacts and experience in life to make something happen that makes you happy and gives you confidence.
The people you surround yourself with can also really change your self esteem. If you are surrounded by people who don't believe in you and give you opportunities or just support you, then that will rub off on you and make you doubt yourself until it becomes unhealthy. BUT, if you are surrounded by people who love and support you and believe in you and your capabilities, then you will believe in yourself. People who don't make you happy, or support you or help you grow in yourself and life, just are not worth it. They're not worth getting upset over. They're not the people you need or want in your life. Don't let them put you down mentally! Take a stand and show them who's better than that and more than capable with anything they put their mind to. Have the last laugh. Keep your head held high because you are more than capable of doing it and are so totally worth it. - HAHA 'because you're worth it', makes me instantly thing of the L'Oreal shampoo advert!!

Felt this was only fitting with the recent S Club 7
Reunion!!! <3 them

As usual, I'm saying all this stuff about keeping your head held high and not getting upset over people or things, but I do. Very much so. And over the next few weeks, I'll be pushed to the limit in trying to take my words into my head as good (or I hope as good) as I give them. As with all words and quotes in life, they are so much easier to say than they are to action and do. It takes practice... and lots of VERY strong mind power skills which can be very hard when your mind is not in a good or sensibly thinking place.

I don't actually know if any of this post makes sense or if it is just one big ramble of saying the same things with no actual point. But, it is stuff that needed to be taken off my chest and a subject that effects us all at one time of another and is one that is hugely affecting me at the moment. It's really not very fun when it does effect us strongly, but that is life and there is nothing we can do.

We have two options in life, to let people rule how our minds think, or to let our minds rule what people think. Is that even a good saying? Hmm... I'm not sure. It just came out my mind. That's the best I got right now!! HAHA

Well, I think that's going to be it for this post. If you think any of this was directed to you, about you or is what you think.... then it most probably was. If that shoes fits and all that jazz. Take a good long look at yourself in the mirror and remember that what you do or say towards someone else can have a really huge effect on someone and their life. Don't bully others, don't put others down or knock them back in situations time and time again. Be kind to one another, love and support people who love and support you and surround yourself with people who are good for you to have in your life. Your confidence says a lot about how your life will go.

Stay Strong
<3

All About That Mind Set!

Long time no speak....

How you doing?

I'm going to be honest, I deleted and renamed the title of this post about 50 times. I haven't posted in a while now and there are a reasons for that. The first and main one being my mood and mind. My mind set is in a place that isn't the nicest of places and when my mind is in that place, writing a post just never really works out to well. Sometimes, I am so positive about life and my condition and progress etc, but others, I am probably one of the most negative people you will ever meet. I put on this act to people in the "outside world" to make it seem like I am coping well and am normal. The truth is, I am human.... I have emotions, and those emotions change like the weather. It only takes something tiny or sometimes even nothing at all to change my mood and mind set and I can go from so positive and happy to so negative and depressed. Some days I am determined to conqeur the world achieving everything I want to and more, yet others, I want to fall in a hole and stay there forever. I know it sounds so dramatic, but honestly, that's how life can be with or without a chronic illness.

 Sure, I have some great people in my life and a couple of good things coming up, but, it just isn't lifting my mood entirely. They might lift it for a little while, but not for very long.

Cheerleading is my biggest realease. For that hour and a half my mind is fully focused on something and I manage to let go of a lot of steam. Unfortunately, my mood will soon drop back down again. I feel like my mood just seems to spiral downwards and my stress levels upwards. For some reason my stress and anxiety levels are so darn high at the moment. I feel anxious about things I've never felt anxious about before and over stressed about everything and anything. It's really horrible to say but it makes me feel like there is no light at the end of the tunnel. I'm sure that is not an easy sentence to read particularly if you are someone who is close to me. Sometimes the truth isn't all that pleasant. Not that I want to sound depressing or anything but it is true.

Your mind set can control so much in your life from the way you see or think of something to the things you do or don't do. It can even affect the way treatments work, so I am told. If you are telling yourself that something is not going to work, it most likely won't work to the best it can. I am guilty as charged when it comes to this, but in fairness, who wouldn't when you have had 3 years of all different forms of treatment not work?! Comes back to that old saying 'Postive mind Positive outcome'. Do I believe it? Hmm.... that I'm not so sure on.

 My mood and mind set are still pretty shitty (excuse my french) to be honest with you. I am using things to calm me down that I have used in the past. Some work temporarily and some... not so much. Music is a big one for me. I can put my headphones in on full blast and just drift off into another place. I love my music and would be lost without it. I'm a HUGE Demi Lovato fan and without her music, I wouldn't be able to get through a lot. She has been through so much and has come out the other side of the tunnel great. Her music tells a story that is honest but has positivity in it. Skyscraper is my all time favourite song and is always on the playlist, particularly when I'm feeling a little low.
I sometimes see this blog as a way to express my feelings and let them out in a way that I don't have to directly speak to someone. I am rubbish at sharing my problems with people as I just get too emotional and end up in tears before I'd even started speaking. And although there are always going to be things I don't want to share with anyone, I see this as a sort of release diary for the things I am ok to share and get off my chest. So, to pretend that I am perfectly fine and never 'down in the dumps' would just be lying to you all and to myself - hence everything written above. 

Another reason I haven't posted in a while is due to trying my new thingymabob. I didn't want to make a post talking about a new treatment that I'm trialing for a month but didn't know much about. I wanted to wait until I knew more about it and had some form of update to actually give. I basically wanted to know what I was talking about rather than rambling on with little to no knowledge. I am going to make a full post on it with a full journey of how it has been and have been keeping a written symptom diary. I'll have pictures and everything. It is a very new treatment so I want to be able to really explain things about it which is why I have held off so far. Does that make sense or am I just rambling? HAHA!

I don't think I have anything else to update you on really as I don't want to get into how my tummy is too much as I want to leave that for when I talk about my thingymabob.

Well, I hope you are doing well.
& until the next time we meet again,


Stay Strong
<3