Howdy my lovelies
As I told you earlier, I had an appointment today with my specialist. He is the one who diagnosed me and has done all my treatment such as feeding tubes, medication and the pacemaker of course. I went today for my check up and a general see how I am doing kind of appointment.
The pacemaker is checked my using a device that looks like what I can only describe as the machine they use when you get a delivery and you have to sign for it. It has another bit connected to it that kind of looks like a plug but without the bits that actually go into the holes. I'm sure there's a technical term for them but oh well!! The 'broken plug' bit goes onto my stomach over the pacemaker and then my specialist can change settings and check that the pacemaker is working properly on the machine bit. I don't feel a thing.
 |
| Pacemaker Controller |
Due to the fact that I didn't see much difference since we turned the settings up in May, he turned it back down today to see how I do then. By turning it down it means the battery will get around 6 years of life, whereas on the setting I had it on the battery only had 2 or 3 years. So, if there isn't much difference in how I am between them, we may as well have it on the lower setting. Am I making sense or have I lost you yet? :)
Other than changing the settings, he said we just have to keep an eye on my weight, so I have to keep a weekly diary of what I weigh. Don't want too much weight falling off so we gotta monitor that carefully. There's not much else he can do for me as it is down to the pain specialist to help me with the pain and hopefully get me back to being able to eat again. At the moment, when I eat I am in sooooo much pain that it makes me need to be sick and retch but nothing comes out. I'm really bad with throwing up so my body then goes into shock or have a panic attack or something along those lines. So NOT cool. So I pretty much go straight to bed after that happens even though my sleeping is atrocious again. On the plus, I'm all caught up on all the latest news... I need something to do when I can't sleep for the majority of the night but everyone else is sound asleep HAHA!!!
I feel so drained emotionally and a bit downhearted because I am feeling so ill but there's not much we can do. I'm starving but can't do anything about it and feel like I'm going backwards once again. I have no energy and feel so tired after doing pretty much nothing and no sleep. All I can do is keep on with the fight and hope things improve I suppose. Maybe they'll find something new soon?
Anyways, that is all for today. I shall speak to you all again very soon :) Don't forget to spread the word to help increase Gastroparesis Awareness.
On a happier note, if you fancy a laugh, you should definitely go check out my last Youtube Video. It'll give you a good chuckle that's for sure :)
Stay Strong
<3
No comments:
Post a Comment