Hey Hey Hey You Wonderful People,
How are you doing?
So, I thought I'd do you a little update. When I say little, I mean quite a bigger so grab a cuppa or a duvet if you can't have the cuppa and get reading :)
Since the New Year, I have had a crazy total of 4 appointments in 3 weeks. Not bad going!! Hospitals are my second home but I must be grateful, some people don't even have one. So, let us go through all the appointments one by one to see my past 3 weeks of Gastroparesis.
I have had 3 hypnotherapy sessions now and honestly, I can't say all that much. It has taught me how to breathe properly because I apparently haven't been and it doesn't help anxiety attacks as my breathing is bad to start with. My last session I had was EMOTIONAL to the max. I was in tears for, well….. most the session. I just got so teary talking about the pain I've got and been dealing with and eating and all that scary jazz. I've decided to have one last session next week to end things badly and get some last techniques. Unfortunately, at £240 a pop, I can't just keep going unless I'm seeing results. Im still not eating and I'm still in pain and been very shaky, anxious and on edge recently. We shall see what that session brings.
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| My love - A Tall Soya Toffee Nut Chocolate Cream Frappuccino With Caramel Drizzle = Pure tastiness and happiness :) |
I have been managing a little more liquid by mouth. Although, we don't know if it was the hypnotherapy or the medication that did that but my guess is the medication if i'm honest. It feels good though because I've stopped off in a Starbucks a couple times with my dad or grandpa in-between or after appointments. Feels like I'm part normal again. I may drink it at snail pace to keep the pain levels minimal, but I'm having a drink and not ending up on the floor in tears. It gives me a little bit of hope that may, just maybe… food could be next. I just need to pluck up the courage to try and eat because every time I think 'yeah, I'm gonna try eat today', I'll go to eat or think about going down to my parents and say I want to try and eat, the anxiety kicks in and the idea fades away and does not happen. Let's keep out fingers crossed!!
Next up is my pain specialist appointment. Nothing too dramatic happened in all honesty. He has upped my dose of the Lyrica/Pregabalin medication. I am now at a dose where he would expect to see some sort of change. Fingers crossed!!!
My specialist…. well, he went over everything that has happened in the last however many weeks it has been since I got my tube as I hadn't seen him. He's happy with how the feeding is going and it is definitely helping me put on weight. YAY!! Maybe I'll be able to fit into my clothes properly soon :). Tube wise, we have been told very different stories when it comes to NJ tube changes. Some people say to change it to the other nostril every few months, some say you can keep it for as long as it's not rotting or split or blocked and others say they have never changed nostril. Confused much!! At the beginning of the appointment, he told me that in 6-8 weeks he would look at what to do now as the NJ tube was never long term and was to strengthen and fatten me up basically. He said in 6-8 weeks either we want me to be managing to eat enough to keep my weight up or think about other types of tubes such as the PEGJ I had last time or a JEJ. They both go through your stomach wall and so are also hidden by your clothes. However, as I learnt last time, they also come with many other issues such as skin granulation and many infections.
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| PEGJ Tube that I had last time. It is a lot more invasion (and painful) than NJ tubes as it goes through the skin. I have a second belly button now HEHE (bet you can't say that) |
I think he thought I didn't like it appearance wise or something because as soon as I said that I quite like my tube and have had no problems with it but instead people have been amazing with it even at work be it customers or other staff. As soon as I said that he told us to forget the 6-8 weeks and to go to him when I was ready to and knew what I wanted to do next. However, still working around a 6-8 week mark to then put a more long term plan into place. In all honesty, I am happy with the NJ Tube, sure, it sometimes hurts my throat and rubs a little on my nose and hangs but I'm getting more used to it and finding ways that helps such as wrapping the tube (gently and not bending or damaging) up around my hair if my hair is up. I forget half the time that the tube is there and quite happy to get on with my life and youtube videos as you'd see if you watch them.
Talking of youtube, I have been getting on with it as per usual all be it not regularly once a week like I started out doing. But, as often as my body lets me :) I love it. It's such a release of performing energy and I really enjoy doing them and watching them. I've also made it over 100 subscribers which is freaking AMAZING and I am so grateful and never thought over 100 people would care or want to watch me being an absolute donut with a camera. If you have some spare time, maybe you could go check my channel out? It could change your life if you CLICK HERE!
Well, I think that just about covers everything for now!!
My question for you all today is: What is your favourite drink from Starbucks?
Speak to y'all soon
Stay Strong
<3
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