Well Hello there all you amazing readers,
It's been a while once again!!
Do not fear though, I am back and ready to type… So lets do this!
Last time we spoke, I had finished with the Hypnotherapy, helped organise and then attended a staff party and was set on the idea of moving to America! Since then, I have had some medicine changes, booked a holiday to FLORIDA in the U S of A, consumed a donut and a half in the space of about 5 minutes, consumed a few to many cookies and a bowl of pasta.
The Pregabalin I've been taking has been increased to a higher dosage and we have also added another medicine called Clobazam. It's in the same medicine family as Pregabalin, it just works in a slightly different way. The hope is that the two of them will work nicely together and help with this stupid darn pain. I've been taking the highest dose that I'm allowed to of the Pregabalin now and it seems to be calming it down a fair amount. I managed to eat some pasta and wasn't dying as much as usual which is a plus. I also managed to have two Millie's Cookies (which are the best type of cookies) whilst out shopping… well in the car on the way home from shopping which is close enough and was in little to no pain!! Like… What??? I can't even … just PARTAYYYYY.
Even though I managed some cookies, that's no going to keep me going alone. So next, we've added the Clobazam. I've only had one dosage of this medication so I can't tell you what the affects of it are.
I did however, just eat some noodles and random veg followed by a donut and a half. I suddenly started craving them after dinner and my brother very kindly said he'd go out and get me some. He bought 4 back. I had one and smothered it in sugar and there was one donut left. My mum didn't want a whole one so… me being the kind, considerate person I am, offered to have the other half for her. They were super yummy and I want more!! I'm in pain mind you….. I'd say maybe a 5 out of 10 - not too bad I guess. Normally my pain is just under my left rib, however, today it is slightly higher on the rib. Same pain and still sharp mind you!
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| YUMMMMMMMMMM - I WANT MORE! |
Lately, I've been getting the feeling of being faint and my concentration levels are well… non existent which is throwing my hearing out too. In my last pain specialists appointment, I was there in person but my head was just not focused at all and felt drained with no energy or motivation. It's making work difficult because I can't focus on what orders people are giving me or don't hear it etc…. have any of you had this and if so, do you know what causes it or anything?
On a positive note, I AM GOING TO FLORIDA!!! My best friend and I are going to America to see Mickey Mouse. I am soooooooooo excited. It has been 10 years this year since I went to Orlando, so I can't wait to see it now. We fly out on March 9th and it can't come sooner. Just the break and get away we both needed! My bank isn't so happy or excited but who cares, you only live once!! 3 weeks 4
days!! Not that I'm counting or anything!! I'm thinking of maybe doing like a video blog whilst I'm there of both just my trip but also how I cope and just generally how it all is having Gastroparesis and a feeding tube. Let me know what you think of the idea and whether it's something anyone would like to see. Just leave me a comment below or tweet me a question or even Facebook me one… I'm not fussy :)
Well, I think that covers just about everything. Maybe I've missed something out but I can't think of any other updates for now!
So my question (asides from the other ones I've asked in the post) for today is: What is you dream holiday/vacation?
Stay Strong
<3
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