Wednesday 11 December 2013

Sore Vagina, Horrendous Drs & Hospital Stays - Gastroparesis Update PART 1

Helllooooooooo

How you all doing? Getting into the festive spirit?

I'm apologizing in advanced. It's quite a LONG post so it's a two-parter so watch out for the 2nd to follow. Making up for lost time!

Sorry it has been quite a while since I last posted. My health took quite a turn unfortunately and has landed me with a feeding tube once again. Okidoki, lets take it back to the start. For those of you who have read my previous posts, you'll know I tried the laser accupuncture. Unfortunately, it did poop besides make a rather large hole in my purse. That kinda sucks… Following on from that, things really did not improve. Pain was becoming worse and worse and my liquid intake came to a standstill. Even taking my daily medication stopped because taking them was making me feel so sick and in pain. NOT COOL!! My pain specialist gave me some Oromorph (type of morphine) to try and give me a 'rest period' and hopefully manage to get some food down me to keep my body going. Did it work? HAHAHAHA course it didn't. Would we really expect anything else in fairness haha. It made me a tad sleepy especially alongside another medication he gave me. However, it started giving me nightmares and after 20 minutes of taking it, I'd be in tears. It made me all emotional which is a side affect of the medication along with the nightmares. So, surprise surprise… another medication I had to stop and had no success. What happened next I hear you scream? Well, maybe not scream but you might be thinking it. I had a very rough weekend (just over month ago now) and was completely and utterly EXHAUSTED. I don't think that word even describes how tired I was both emotionally and physically. On the Monday morning, my parents decided enough was enough and decided to take me into A&E. It was the first time I've ever called in sick to work due to my Gastroparesis. Kinda felt like I'd really gone back to square one and had let myself down. Anyway, back to the point. I had my bloods and blood pressure taken and was told I was pretty dehydrated. 
To be fair, I could have told them that without going through all the needles and that jazz but hey ho. I was given 2 bags of fluid through a cannula and got to go home later that night. It didn't particularly make me feel hugely better but restored some much needed fluids. This was just the start of the week from hell though. Tuesday I went back into work for about 2 hours and then went home early as I just wasn't feeling well. For me to turn around and say that I don't feel well enough to stay at work … well…. that says it all. I usually bring out my stubborn side and push through it. Wednesday I had an appointment with my pain specialist again first thing in the morning. Everything got very emotional and it ended with me, my mum, my dad, my pain specialist and his secretary all in tears. Yep…. like I say… if you're gonna do it… do it properly ;) It also ended with him sending me back to the A&E department to be admitted and to have an Ultra Sound and an Endoscopy. He wanted to check that there were no other problems that we would be covering up with medication. Both tests came back clear aside from the endoscopy showing excessive bile in my stomach. This literally had to be the worse experience I had from start to finish. I saw the WORST Gastro Doctor. He was awful. So rude and useless. He walked off for about 3 hours with all my notes which meant the nurses couldn't give me any of my anti-sickness medicine or anything. Even they put a complaint in as he lied and everything. I ended up shouting at him to go away and that I never wanted to see or speak to him again.. WOOPS - but hey! He deserved it! 
I may or may not have shouted at a fellow patient too. I had a panic attack/mental breakdown whilst I was in there and when you have one of them… you don't control what you do or say and she told me to be quiet because there are sick people in there and I told her to shut up. DOUBLE WOOPS. 
Then, when I had the endoscopy, for some unknown reason the sedation did NOT work. It didn't even make me feel sleepy or not with it. I was totally and completely aware of what was going on and felt everything. It was the WORST experience of my life being awake for that. My gag refluxes are pretty darn sensitive so sticking a camera down my throat whilst I'm awake was just a drama and a half. I kept gagging it back up and they'd put it back down and we'd keep going round in this circle until they topped up the sedation and it made me a little sleepy but enough for them to be able to get it down and staying down. It really hurt my throat for the next like week which also sucked.
Funny story though, the old woman opposite me had a sore vagina and she wasn't afraid to tell the world. So basically, my mum stayed the night in the hospital with me in a chair… which may I add was so so nice of her. WORLDS BEST MUM RIGHT THERE!! I get very anxious in hospitals at the best of times, so she stayed partly to keep me calm and partly because I would have walked out otherwise as I was getting so stress and really didn't want to be there. Anyway, back to the point again, when we were trying to sleep… this woman every 10 minutes would suddenly shout out… '' HELP ME, I HAVE A PAIN IN MY VAGINA''. LITERALLY EVERY 10 MINUTES! It's hilarious now and makes for a great story to make people laugh but at the time, after like 50 times it's a bit like… yeh okay we know, you have a sore vaj and you want some help… She apparently didn't know what she was saying so it's not her fault but still.. when you're trying to sleep… not the best. But, I had about 3 or 4 bags of fluids over the course of the 2 day stay which definitely gave me a bit more energy. Whilst I was having a break down, I decided that I wanted a feeding tube. I couldn't do it anymore. The pressure of having to try and eat to give my body what it needs and all that was too much along with feeling so bad health wise. 
I don't want to make this post too long… so I will continue the rest in another blog post that I shall go and write … well straight after I post this :D 

I hope you are all well and I will speak to you again in a few minutes :) I'll post it straight after I write it… I just didn't want to bore you with one hugeeeeeeeeeeee post - see… being thoughtful HAHA!!

Question For The Post: What's your worst or funniest experience during a hospital stay?

Stay Strong
<3

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